{"id":171,"date":"2023-08-24T23:58:58","date_gmt":"2023-08-24T23:58:58","guid":{"rendered":"https:\/\/pharmacosmosmedical.com\/staging\/1978\/?page_id=171"},"modified":"2026-04-02T11:21:00","modified_gmt":"2026-04-02T11:21:00","slug":"patient-burden-studies","status":"publish","type":"page","link":"https:\/\/pharmacosmosmedical.com\/staging\/1978\/patient-burden-studies\/","title":{"rendered":"Patient Burden Studies"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Course Hero&#8221; _builder_version=&#8221;4.23.3&#8243; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_stops=&#8221;#131b68 0%|#9271f6 100%&#8221; background_color_gradient_start=&#8221;#474ab6&#8243; background_color_gradient_end=&#8221;#9271f6&#8243; background_image=&#8221;https:\/\/pharmacosmosmedical.com\/staging\/1978\/wp-content\/uploads\/2023\/07\/coding-background-texture.jpg&#8221; background_blend=&#8221;overlay&#8221; custom_padding=&#8221;35px|0px|0px|0px|false|false&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;2%&#8221; da_disable_devices=&#8221;off|off|off&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; width=&#8221;70.6%&#8221; min_height=&#8221;208.5px&#8221; custom_padding=&#8221;27px|0px|70px|0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; header_font=&#8221;|on|||&#8221; header_text_align=&#8221;center&#8221; header_font_size=&#8221;42px&#8221; header_line_height=&#8221;1.3em&#8221; background_layout=&#8221;dark&#8221; custom_padding=&#8221;|||&#8221; header_font_size_tablet=&#8221;&#8221; header_font_size_phone=&#8221;&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>Patient Burden Studies<\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.0&#8243; text_text_color=&#8221;#d4ccff&#8221; text_font_size=&#8221;16px&#8221; text_orientation=&#8221;center&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\">Studies conducted to understand and quantify the physical, emotional, social, and economic impact of specific medications, medical conditions, or disease on patients\u2019 lives<\/p>\n<p style=\"text-align: center;\">\u00a0This section includes links to Pharmacosmos sponsored-publications and selected Pharmacosmos posters. Information contained in these publications may include information that is inconsistent with the FDA approved use of product(s). Pharmacosmos does not recommend the use of its products in a manner that is not consistent with FDA-approved labeling. Additionally, the content contained in this section is subject to congress copyright permissions.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Features&#8221; _builder_version=&#8221;4.27.5&#8243; custom_margin=&#8221;|||&#8221; custom_padding=&#8221;96px|0px|40px|0px|false|&#8221; da_popup_slug=&#8221;#pop4&#8243; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.27.5&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; min_height=&#8221;534.9px&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;||0px|||&#8221; custom_css_main_element=&#8221;display: flex;||flex-direction: row;&#8221; global_colors_info=&#8221;{}&#8221; custom_css_main_element_tablet=&#8221;display: flex;||flex-direction: column;&#8221; custom_css_main_element_phone=&#8221;display: flex;||flex-direction: column;&#8221; custom_css_main_element_last_edited=&#8221;on|phone&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; custom_padding=&#8221;|||&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb _builder_version=&#8221;4.27.5&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;16px||50px||false|false&#8221; custom_padding=&#8221;10px|20px|10px|20px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>November 2025 | Patient Related Outcome Measures\u00a0<span data-usefontface=\"false\" data-contrast=\"none\"><\/span><\/p>\n<p><b><\/b><\/p>\n<p><span style=\"font-size: 16px;\"><strong>Perspectives on Intravenous Iron Therapy Logistics and Adherence: Results from a Patient Survey\u00a0<\/strong><\/span><\/p>\n<p><span style=\"font-size: 16px;\">Lee EJ, Louden L, Applequist J, et al.\u00a0<\/span><\/p>\n<p>[\/et_pb_blurb][et_pb_blurb _builder_version=&#8221;4.27.6&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; min_height=&#8221;52px&#8221; custom_margin=&#8221;0px||29px||false|false&#8221; custom_padding=&#8221;20px||9px||false|false&#8221; hover_enabled=&#8221;0&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p style=\"text-align: center;\">\u00a0\u00a0<a href=\"#pop-1\" target=\"_blank\" rel=\"noopener\"><strong>View Publication<\/strong><\/a><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.23.3&#8243; custom_padding=&#8221;|||&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; min_height=&#8221;227px&#8221; custom_margin=&#8221;||70px||false|false&#8221; custom_padding=&#8221;0px|20px|0px|20px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\"><\/span><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\">January-December 2025 | Women&#8217;s Health\u00a0<\/span><\/p>\n<p><strong><\/strong><\/p>\n<p><strong>Iron deficiency anemia in patients with heavy menstrual bleeding: The patients&#8217; perspective from diagnosis to treatment <\/strong><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\">Akpan IJ, Narang M, Zampaglione E, et al. <\/span><span>\u200b<\/span><\/p>\n<p>[\/et_pb_blurb][et_pb_blurb url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.27.6&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; min_height=&#8221;56px&#8221; custom_margin=&#8221;-77px|||||&#8221; custom_padding=&#8221;19px||0px||false|false&#8221; link_option_url_new_window=&#8221;on&#8221; hover_enabled=&#8221;0&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p style=\"text-align: center;\">\u00a0<a href=\"#pop-2\" target=\"_blank\" rel=\"noopener\"><strong>View Publication<\/strong><\/a><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;display: flex;||flex-direction: row;&#8221; global_colors_info=&#8221;{}&#8221; custom_css_main_element_tablet=&#8221;display: flex;||flex-direction: column;&#8221; custom_css_main_element_phone=&#8221;display: flex;||flex-direction: column;&#8221; custom_css_main_element_last_edited=&#8221;on|phone&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; custom_padding=&#8221;|||&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;16px||50px||false|false&#8221; custom_padding=&#8221;1px|20px|1px|20px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>April 24-28, 2024 | ONS<span data-usefontface=\"false\" data-contrast=\"none\"> (Poster)<\/span><span data-usefontface=\"false\" data-contrast=\"none\"><\/span><\/p>\n<p><b><\/b><\/p>\n<p><span style=\"font-size: 16px;\"><strong>Iron deficiency anemia in patients with heavy menstrual bleeding: Patient journey from diagnosis to treatment<\/strong><\/span><\/p>\n<p><span style=\"font-size: 16px;\">Stefanik DC, Marshall S, Narang M, Akpan IJ.<\/span><\/p>\n<p>[\/et_pb_blurb][et_pb_blurb url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; min_height=&#8221;52px&#8221; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;20px||0px||false|false&#8221; link_option_url_new_window=&#8221;on&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong><a href=\"https:\/\/pharmacosmosmedical.com\/staging\/1978\/wp-content\/uploads\/2024\/09\/ONS-2024-Poster_IDA-in-Patients-with-HMB-Patient-Journey-from-Diagnosis-To-Treatment.pdf\" rel=\"attachment noopener wp-att-714\" target=\"_blank\">View Poster (PDF)<\/a><\/strong><\/p>\n<p style=\"text-align: center;\"><strong><\/strong><\/p>\n<p><a href=\"https:\/\/pharmacosmosmedical.com\/staging\/1978\/wp-content\/uploads\/2024\/09\/ONS-2024-Video-Poster-Presentation.mp4\" target=\"_blank\" rel=\"noopener\"><img data-recalc-dims=\"1\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/pharmacosmosmedical.com\/staging\/1978\/wp-content\/uploads\/2025\/08\/pbs-v-thumb-01.png?w=1080&#038;ssl=1\" style=\"width: 100%; height: 250px;\" \/><\/a>[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.23.3&#8243; custom_padding=&#8221;|||&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; min_height=&#8221;227px&#8221; custom_margin=&#8221;||70px||false|false&#8221; custom_padding=&#8221;0px|20px|0px|20px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\"><\/span><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\">April 6-7, 2024 | CureHHT (Poster)<\/span><\/p>\n<p><strong><\/strong><\/p>\n<p><strong>Impact of multiple-dose IV iron therapy on quality of life: Results from a patient survey<\/strong><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\">Winegar B, Blokh I, Kemble S.<\/span><span>\u200b<\/span><\/p>\n<p>[\/et_pb_blurb][et_pb_blurb url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; min_height=&#8221;56px&#8221; custom_margin=&#8221;-77px|||||&#8221; custom_padding=&#8221;19px||0px||false|false&#8221; link_option_url_new_window=&#8221;on&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong><a href=\"https:\/\/pharmacosmosmedical.com\/staging\/1978\/wp-content\/uploads\/2024\/09\/CureHHT-2024-Poster_Impact-of-Multiple-Dose-IV-Iron-Therapy-on-QOL-Results-from-a-Patient-Survey.pdf\" rel=\"attachment noopener wp-att-723\" target=\"_blank\">View Poster<\/a><\/strong><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;display: flex;||flex-direction: row;&#8221; global_colors_info=&#8221;{}&#8221; custom_css_main_element_tablet=&#8221;display: flex;||flex-direction: column;&#8221; custom_css_main_element_phone=&#8221;display: flex;||flex-direction: column;&#8221; custom_css_main_element_last_edited=&#8221;on|phone&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; custom_padding=&#8221;|||&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;||40px||false|false&#8221; custom_padding=&#8221;0px|20px|0px|20px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\"><\/span><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\">April 3-6, 2024 | HOPA (Poster)<\/span><strong><\/strong><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\"><\/span><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\" style=\"font-size: 16px;\"><strong>Patient perspective: Logistics of intravenous iron administration and adherence to therapy<\/strong><\/span><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\" style=\"font-size: 16px;\">Louden L, Wilson BJ, Lee EJ, <\/span><span data-usefontface=\"false\" data-contrast=\"none\" style=\"font-size: 16px;\">Talwar S. <\/span><span style=\"font-size: 16px;\">\u200b<\/span><\/p>\n<p>[\/et_pb_blurb][et_pb_blurb url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; min_height=&#8221;52px&#8221; custom_margin=&#8221;-7px|||||&#8221; custom_padding=&#8221;19px||30px||false|false&#8221; link_option_url_new_window=&#8221;on&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><strong>\u00a0 <\/strong><a href=\"https:\/\/pharmacosmosmedical.com\/staging\/1978\/wp-content\/uploads\/2024\/09\/HOPA-2024-Poster-Patient-Perspective-Logistics-of-IVI-Administration-and-Adherence-to-Therapy.pdf\" rel=\"attachment noopener wp-att-713\" target=\"_blank\"><strong>View Poster<\/strong><\/a><a href=\"#pop\"><strong><\/strong><\/a><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.23.3&#8243; custom_padding=&#8221;|||&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; custom_margin=&#8221;15px||15px||true|false&#8221; custom_padding=&#8221;0px|20px|0px|20px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>November 9-12, 2023 | JADPRO<span data-usefontface=\"false\" data-contrast=\"none\"> (Poster)<\/span><span data-usefontface=\"false\" data-contrast=\"none\"><\/span><\/p>\n<p><b><\/b><\/p>\n<p><strong>Logistics of intravenous iron administration and adherence to therapy: Results from a patient survey<\/strong><\/p>\n<p><span data-usefontface=\"false\" data-contrast=\"none\">Wilson BJ, Strauss J, Lee E<\/span><span>.<\/span><\/p>\n<p>[\/et_pb_blurb][et_pb_blurb url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; body_text_color=&#8221;#131B68&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;1.5em&#8221; min_height=&#8221;52px&#8221; custom_margin=&#8221;0px||||false|false&#8221; 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Information contained in these publications may include information that is inconsistent with the FDA approved use of product(s). 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Information contained in these publications may include information that is inconsistent with the FDA approved use of product(s). 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